Understanding the Misunderstood.

Friday, June 1, 2012

Awareness still needs to be spread about ASD

A recent post on Facebook really rubbed me the wrong way, so much so that I "unfriended" them... Whoever can sit there & judge mothers with ASD children saying it's all from the lack of parenting is truly ignorant about the disorder. I was appalled that such ignorance can be posted for other ignorant people to comment and ralley with the same opinions...truly awareness still needs to be put out there.  We are the opposite of "lazy parents who just don't know how to handle their kids". We are up late at night writing in our journals about what happened today so that we can keep record of tantrums and what the triggers may be. We are the only ones that understand our children when the world refuses to look beyond their "selfishness" & "lack of empathy". We are up during every down time we have doing research and learning about ABA, visual, physical, & verbal prompting, comorbity, fading, reward systems, behavior modifications, accommodations, not to mention the MANY evaluations that are done just so another evaluator can do the same. All the therapies we attend, speech, behavior, play therapy...why would I, a "lazy parent" take up all my free time to fight for my kid if I am a "bad parent"?  I know the post wasn't written about me but it was written about ADHD, and high functioning autistic kids being "overly diagnosed" and "there's no need for them to be diagnosed if they're high functioning" but this was such a hurtful statement to make and it was clearly an ignorant statement because if you only knew that EVERY kid in the spectrum should receive services. Without services for Liam we would not be where we are today, I'd still be having to restrain him while he has his tantrum, I'd still be struggling with understanding what he's thinking and how to handle him so not to trigger a tantrum. If you think you can judge when you don't have kids or you have kids but they are "angels", you can't possibly begin to imagine the life of a child with ASD. To see your kid riddled with anxiety so much that he bruises his head out of rage, so filled with anxiety because the world and his own parents don't understand him, so filled with anxiety that his world crashes down when one single toy or furniture is out of the position that it was last in. Childhood isn't meant to have anxiety and worry about the exact way a task should be performed or it must be repeated until it's right.  There's nothing more painful for parents than to see your kid have more worries than YOU. Autism is a "hidden disability" and there is no cure. There is no miracle drug, unlike what that Facebook poster may think it isn't about being labeled with the disorder so you can drug your kid, and if there were a miracle drug that can help our children function then who is to judge but the parents making the decision of their own. No one should make judgments about anything but what is happening with themselves. Facebook is too easy and can give too much power for ignorant statements to be made and really no responsibility is taken for such uneducated opinions. The more I grow, the older my kids get, & the more life changes, the less opinions and judgments are passed and I start making educated opinions & try to come up with solutions. Nothing good comes from negativity but more negativity. If we concentrate on WHY & WHAT causes 1 in 88 of our children to be diagnosed with ASD & we start to try to UNDERSTAND & HELP our children rather than judge the parents and the children, the MORE success we will have at overcoming & dealing with this childhood epidemic.

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